Bliss is a charity working for sick and premature babies. There is a parent support helpline.
Sands is the Stillbirth and Neonatal death charity organisation. The support group offers advice and telephone support for bereaved parents.
This site contains information about TOBY, the completed UK cooling study, and a link to the register of cooling. There is useful information about this trial and whole body hypothermia for the treatment of perinatal asphyxia encephalopathy. The parent newsletters for the trial can be downloaded from this site.
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. Search for "bumetanide AND newborn" to find information on the US trial of bumetanide, currently recruiting at Harvard.